WP1 objective: Generation of a centralized database with comprehensive clinical data (baseline and during follow-up) of patients with DCM from clinical participating centers.
The DCM cohorts for this project comprise 9,500 probands and 2,500 relatives (carriers of disease-causing variants with variable phenotypes) assembled from 5 major European cardiomyopathy centers. Detailed phenotyping and omics datasets currently available, together with those generated during this project, will make this the largest comprehensively characterized DCM cohort worldwide, and enable the goals of this project. A centralised database will be established and populated with key clinical and demographic data.